Unlocking the Hidden Links: Similarities Among Rare Diseases?

The criteria for what constitutes a rare disease differs from one country to another. For instance, the FDA Orphan Drug Act defines a rare disease as one that affects fewer than 200,000 people in the United States1. In the European Union, a rare disease is defined as one that affects no more than one person in 2,0002. Japan’s legal definition considers a disease rare if it affects fewer than 50,000 or about 1 in 2,500 people3. Given the lack of a universal definition, it raises the question: Could there be any similarities among rare diseases?

Replacing Flipcharts with Tablets

The Challenge: Illegible Flip Charts, Lots of Them…

In a world dominated by technology and automation, the financial services industry finds itself at a crossroads. The rise of FinTechs and digital advancements has undoubtedly increased efficiency and convenience, but it has also given rise to a growing concern – the loss of the human touch.

I just returned from the 2023 American Society of Clinical Oncology (ASCO) annual meeting, which I attended with 36,000 of my closest oncology friends. The meeting offered exciting science and meaningful clinical insights. What we understand about the biology and treatment of cancer is progressing at breakneck speed. It’s an exciting time to be in oncology.

As Artificial Intelligence (AI) garners more frequent and alarming headlines surrounding its potential impact on society, angst about the future of many careers is heightened. The democratization of AI will force established professionals to wonder what the future holds for their profession. In the marketing research industry, it is not difficult to see the potential impact of AI. Ask ChatGPT to create a discussion guide for an interview with a consumer about how they choose toothpaste and within a minute a working draft is ready for review.

Driving for insights within Online Research Communities is only possible through the ongoing participation of our respondents. As part of our continuous improvement here at MarketVision Research, we conducted research with our community members to learn what drives their participation in Online Communities. Through this research, we discovered some key themes about the “why” behind research participation and how to make the experience more enjoyable for members.